Happy World Down Syndrome Day!

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3/21

Today is World Down Syndrome Day.
As a parent of a child with Down Syndrome the last 5 years has been a journey of learning.  The one thing that I can say that we have learned more than anything is that we should give her every opportunity.  She always “Exceeds Expectations.”
She is a talented little thing with a will and determination that will not stop.
When we began this journey, we were lost. Then, we met other parents, made friends along the way, and found that we were not alone.  Supporting one another, encouraging and living by example, they have shown us that our blessings can be anything, do anything, and achieve anything.
As we celebrate this World Down Syndrome Day, we ask that you go the extra mile for someone today in celebration of those with the extra chromosome.  Pay it forward and share your gift. whatever it might be.  Even a smile can change the world for someone.  It sure has for us.

Celebrate the ABILITY!
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Upcoming Events

Please mark you calendars and Plan to join us for the Following events!

3/21- World Down Syndrome Day celebration at The YOUTH MUSEUM of Southern West Virginia –
They have a WONDERFUL New Exhibit – “The Wizard of OZ”  we also have other fun planned, we hope you will join us!

4/2 – SPRING FLING WITH THE BUDDIES!  – From the wonderful CONCORD UNIVERSITY Friends and Family who brought you “Christmas with the Buddies” It is SPRING FLING with the Buddies!
RSVP NEEDED ASAP for Tye Dye Tshirts – Please include shirt sizes needed!
Games ,
Food,
An Easter Egg Hunt
Crafts and MORE!
Hot dogs on the Grill with all the fixin’s
More Details to come!!

4/23 Volleyball for Autism!  We are putting together a team!  Wanna play? Email us!

4/30 FREE IEP Workshop
IEP-WORKSHOP

IEP’s can be very confusing and overwhelming.  We are offering this free workshop that will hopefully clear the path for your child’s education. Bring your IEP’s and Questions!  This workshop is being offered at no cost. Donations are more than welcome.  Childcare will be provided.  Lunch will be available for $10.00 per person.
SATURDAY APRIL 30th, 2016

Schedule –
9AM – Registration/Check in
10AM Workshop Begins
12Noon – Break for lunch
12:45 – Question and answer period.
Presented by: Kelly Miller: Mother of two girls, Emily who is a Senior at Marshall, and Allison a Freshman at Lincoln County High School.  She been a Disability Advocate for over 16 years.  She does IEP and Advocacy trainings throughout the state  Employed by WVU Center for Excellence in Disability as the Senior Specialist for the Parent Network Project.  She is housed  within the DHHR and contracted by the Children with Special Health Care Needs Program, and the Fostering Healthy Kids Pilot Program.  She is also a ADA Trainer in the state of WV.  
She is also on the following boards and Councils: WV DD Council WV ,Advisory Council for the Education for Exceptional Children ,WV QIA Council, DSNWV ,Fairshake Network ,WV Bureau of Senior Services Direct Care Board ,Special Olympics.
ERMA BYRD EDUCATION CENTER is located at 300 University Dr, Beckley, WV 25801 Phone:(304) 255-5812

If you would like a registration form for this event – Email Down21wv@gmail.com

 

Sensory Friendly Film Program – ZooTopia 3/5 11AM

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PLAN TO JOIN US!
Bring the entire Family! Everyone is welcome!

Sensory showing March 5th  @ 11am
The Galleria 14 in Beckley and “Down with That” – The Down Syndrome Family Support Group of Southern West Virginia invite families affected by Down Syndrome, Autism, and ALL other challenges to enjoy  ZOOTOPIA  in a safe and accepting environment with the
“Sensory Friendly Films” program. March 5th @ 11am .

Matinee pricing applies. Headphones and apparatus accommodations available upon request.

In order to provide a more accepting and comfortable setting for this unique audience, the movie auditoriums will have their lights brought up and the sound turned down, families

will be able to bring in their own gluten-free, casein-free snacks, and no previews or advertisements will be shown before the movie. Additionally, audience members are welcome to get up and dance, walk, shout or sing along- unless the safety of the audience is questioned.

 

All ages welcome!

 

Kung Fu Panda 3

Hope you have had a Great 2016 so far!
We are kicking off this year with our FIRST Sensory Friendly Family Films program with Kung Fu Panda 3 – Hope to see you there!
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PLAN TO JOIN US!
Bring the entire Family! Everyone is welcome!

Sensory showing January 30th  @ 11am
The Galleria 14 in Beckley and “Down with That” – The Down Syndrome Family Support Group of Southern West Virginia invite families affected by Down Syndrome, Autism, and ALL other challenges to enjoy  KUNG FU PANDA 3 in a safe and accepting environment with the “Sensory Friendly Films” program. January 30th  @ 11am .

Matinee pricing applies. Headphones and apparatus accommodations available upon request.

In order to provide a more accepting and comfortable setting for this unique audience, the movie auditoriums will have their lights brought up and the sound turned down, families will be able to bring in their own gluten-free, casein-free snacks, and no previews or advertisements will be shown before the movie. Additionally, audience members are welcome to get up and dance, walk, shout or sing along- unless the safety of the audience is questioned.

All ages welcome!

This is an EVENT MOVIE.
We will be setting up in the lobby of the Galleria 14 with chances for you to play games win and more with local businesses!

Marquee Cinemas, McDonald’s of Beckley and 103CIR

 

 

https://www.facebook.com/events/995571710514328/

Second Annual Sensitive Santa Pictures

This is the Second Annual Sensitive Santa Pictures event at The Youth Museum of Southern West Virginia!  December 12th from 2-4PM  the cost is $5. per person.  We hope you will join us in the family friendly environment to promote inclusion and offer the opportunity for all kids to visit with Santa.   This event is open to the public.  Please feel free to share with teachers and Friends who might enjoy this event with us!
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Sensory Friendly Films Program – PEANUTS – 11/7

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PLAN TO JOIN US!
Bring the entire Family! Everyone is welcome! Sensory showing November 7th  @ 11am
The Galleria 14 in Beckley and “Down with That” – The Down Syndrome Family Support Group of Southern West Virginia invite families affected by Down Syndrome, Autism, and ALL other challenges to enjoy  The Peanuts Movie in a safe and accepting environment with the
“Sensory Friendly Films” program. November 7th  at 11:00 AM .

Matinee pricing applies. Headphones and apparatus accommodations available upon request.

In order to provide a more accepting and comfortable setting for this unique audience, the movie auditoriums will have their lights brought up and the sound turned down, families will be able to bring in their own gluten-free, casein-free snacks, and no previews or advertisements will be shown before the movie. Additionally, audience members are welcome to get up and dance, walk, shout or sing along- unless the safety of the audience is questioned.

All ages welcome!

This is an EVENT MOVIE.  We will be setting up in the lobby of the Galleria 14 with chances for you to play games win and more with local businesses!  Plus register to win a special basket just during the sensory showing!

mcdonalds_logo marquee_cinemas rickandlolarev


 

October/ November events

Hope you are enjoying the fall harvest season!
We have a couple things on our calendar for October and we wanted to make sure we were on yours!

October 23rd is the Great Pumpkin Party at Okes Family Farm. We are hoping to get a good head county for the Hotdogs and S’mores, If you plan on joining us, Please call or Text Andrea: 304-415-1399 or Annette: 304-222-2291 or Email us at down21wv@gmail.com 
 
October 28th ,  WV IDD/Waiver public forums  Beckley Raleigh county convention center.  See Below for details

October 31st.  Youth Museum Tailgate Halloween = 11-1 Uptown Beckley. $1. per child.  See you there!

November 7th  Sensory Showing:  Peanuts  11AM  Details to Come

November 16th  Jump Zone! – check your Buddy Bag for Information.
Need info?   Contact us!
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Remember: Halloween can be a real struggle

For Parents – Friends- Families and those who are just finding us.
WELCOME!
October is Down Syndrome awareness month.
We consider our kids, family members amazing in every way.  But although they are “More Alike than Different.”  We still can face our challenges.   So as we roam and attend events please be understanding . Things don’t always go the way we planned – or the way you’d expect.   I do not have a source for this list. but it pretty much nails it!
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Happy Halloween!

Down Syndrome Awareness and Support

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