Reminder: Sensory Film program continues Tomorrow.

Just a friendly reminder that we will be hosting another Sensory Friendly Film showing of TROLLS at the Galleria 14 in Beckley  Saturday at 11AM.  We invite you to bring the family and enjoy a fun movie in a very accepting environment. We do not judge. We only want to provide a movie experience for families that is comforting and enjoyable.

Why do we do Sensory Films?
There are many reasons.  First and Foremost the challenges that special needs families face can make something as simple as going to the movies a chore!  Stimulation overload. Loud sounds. Fidgets.  Apparatus accommodations.  Many times we find that some families feel that it is easier to just stay home. In this instance everyone looses.
As a child, some of my most favorite memories is going to see the original Star Wars with my Dad.  It is a memory that I will carry with me all my life. Why should our families miss out on that fabulous family activity of going to the movies AS A FAMILY.  It is an opportunity for a FAMILY experience that everyone can enjoy. Don’t worry about sitting still or being quiet. Come as you are.

Secondly, it is a Training Ground.
Social /Emotional interactions can be a challenge for some of our kids. It is Focal Point of the early education. These skills are something that may not come naturally to your child. How do we learn? Practice!  Getting out into a group that understands and does not judge when things lead to a sensory overload or meltdown. We get it.

Finally:

YOU GET TO MEET FAMILIES JUST LIKE YOURS!

We hope to see you soon!

Resources donated to Local Library for Families in West Virginia.

unnamed(Pictured L-R  Down With That Secretary/Treasurer; Andrea Mullins. Vice President; Annette Broadnax and President; Lola Rizer) 

10/28/2016
The Down Syndrome Family Support Group of Southern West Virginia (Down with That) donated 21 books to the Raleigh County Library system in Beckley, WV as part of October’s Down Syndrome Awareness month.  The books will be processed and made available to the public within a few days.

“Having these books available to the public in general is a great way to advocate for our families and educate the community as a whole.” said Group President, Lola Rizer.

The books range from informational books on teaching reading and math to tackling IEP’s as well as family support information including Down Syndrome Parenting 101 and sibling support reading. These books will be easily found by searching the library system for topics related to Down Syndrome and Autism.

“We think that it is important to note that no matter the diagnosis, be it Down Syndrome , Autism or other mental and physical challenges, Special needs families share many things in common. We have attempted to pull together a wide variety of books that can address as many topics as possible. We plan on adding to this collection as appropriate books become available” says Rizer.

We invite you to share this information with families and friends.  A list of donated titles is below.   Thank you.

Find More on the Raleigh County Public Library page here:  http://rcplwv.org/

Boyfriends & Girlfriends   Written expressly for teens and adults with intellectual or developmental disabilities, Boyfriends & Girlfriends explains the dos and don’ts of dating and validates their normal, age-appropriate desire for companionship and romance.

 

Getting from Me to We  Understand the roots of social skills challenges faced by children 7 and younger with ADHD, anxiety, autism, language delays, or behavior issues. A SLP shows parents & teachers how to give these kids the foundational skills necessary to make friends.

I Like Berries, Do You? Shortlisted for CLEL Bell Awards 2014
Engaging board book encourages children with Down syndrome to try a healthful & varied diet!

 

Lucky Dogs, Lost Hats, and Dating Don´ts A collection of over a dozen hi-lo (hi interest-lo reading level) short stories for people with intellectual disabilities or learning challenges. True-to-life stories with characters who want to live independently appeals to teens and adults.

Mental Wellness in Adults with Down Syndrome Experts in adolescent and adult Down syndrome issues advise how to promote mental wellness and troubleshoot when problems arise.

My Friend Isabelle  2004 iParenting Media Award Winner
A charming story about what makes a friendship, featuring two friends…a typically developing child and a child with Down syndrome. Free Teacher’s Guide download!

My Up & Down & All Around Book  Board book features cute children with Down syndrome and introduces many frequently used prepositions (up, down, in, out).

Supporting Positive Behavior in Children and Teens with Down Syndrome Address common behavior issues in children with Down syndrome using the author’s effective and proactive approach to behavior management.

Fine Motor Skills for Children with Down Syndrome Third edition of comprehensive resource on fine motor development offers strategies & activities to improve daily living skills. Covers sensory issues, skills for computer & cell phone use, and more.

Teaching Reading to Children with Down Syndrome Teach your child with Down syndrome to read using the author’s nationally recognized, proven method. Now includes a CD-ROM of Appendices.

The Boys’ Guide to Growing Up Don’t miss this guide on puberty, specifically designed for boys with intellectual disabilities! It’s written by a sexuality educator with expertise in the developmental disabilities field.

We’ll Paint the Octopus Red  As six-year-old Emma anticipates the birth of her new baby brother or sister, she vividly imagines all of the things they can do together. When the baby is born, her father tells her he’s a boy, named Isaac, and he has Down syndrome.

 

Down Syndrome Parenting 101 2012 About.com Readers’ Choice Awards Winner
Uplifting & realistic advice from veteran parent and educator on what’s important when raising a child with Down syndrome: appreciation for personality, literacy, education, discipline & more.

 

Down Syndrome: The First 18 Months DVD Thirteen leading medical and developmental experts on Down syndrome, experienced parents, and infants and toddlers with Down syndrome are brought together in this heartwarming DVD to inform, inspire, guide, and support. View video clips!

 

Early Communication Skills for Children with Down Syndrome An expert shows parents and professionals how to support and encourage speech & language development in children with Down syndrome from birth to age 6. Covers problem areas & treatments, dual diagnosis, and technology & AAC.

 

Teaching Math to People with Down Syndrome and Other Hands-on Learners Teaching Math gives parents and teachers high-interest, hands-on strategies and ideas for teaching math to learners of all ages.

Fasten Your Seatbelt An engaging question and answer format addresses the issues and concerns of teens who have a brother or sister with Down syndrome.

 

Gifts 2  2009 ForeWord’s Book of the Year Award Finalist This sequel to the award-winning first volume, delves deeply into the impact a child with Down syndrome has on family, friends, & community.

 

Kids Like Me…Learn ABCs 2009 Moonbeam Children’s Book Award: Bronze Medal
Fun, colorful board book features children with Down syndrome learning their ABCs. Includes sign language too!

 

Kids Like Me…Learn Colors Page after page of engaging photos of kids with Down syndrome help youngsters learn their colors. Color words are in both English and Spanish!

 

My Heart Can’t Even Believe It In this touching and honest memoir, a journalist reveals the transformative power of parenting her daughter with Down syndrome.

 

Speaking of Apraxia 2013 About.com Readers’ Choice Awards Finalist
Hope and practical advice for this neurologically-based motor speech disorder that can appear alone or with autism or Down syndrome. Covers diagnosis, treatment, school, family life & more.

 

Targeting Language Delays 2014 ForeWord Reviews’ INDIEFAB Book of the Year Awards Gold Winner for Education
Help students with developmental challenges with listening, language, and whole-word reading skills using over 100 IEP goals & activities.

 

The Down Syndrome Transition Handbook 2011 Independent Publisher Book Award: Bronze Medalist
A veteran parent and expert on transitioning advises families on how to prepare their child with Down syndrome for independent adult life.

 

The Girls’ Guide to Growing Up Written for girls ages 8-14 with intellectual disabilities, this easy-to-follow guide covers what they need to know about puberty to be hygienic, healthy, and safe.

 

The Guide to Good Health for Teens & Adults with Down Syndrome Chosen as a Library Journal Best Consumer Health Book of 2010 A comprehensive resource to encourage and maintain good physical health written by leading experts in Down syndrome care.

 

The Sibling Survival Guide 2014 ForeWord Reviews’ INDIEFAB Book of the Year Awards Finalist
Experts on disabilities & sibling relationships offer practical info and guidance for teens & adults considering, or in the midst of, caring for a sibling with a disability.

 

When Down Syndrome and Autism Intersect Examines the unique profile of a Down Syndrome-Autism Spectrum Disorder (DS-ASD) diagnosis & best practices for screening, treatment, education & caretaking. For those whose child is already diagnosed, and those who suspect something more.

If you have any questions or suggestions for this ever growing list. Please reach out to us at down21wv@gmail.com   or visit us online at downwiththat.wordress.com  

 

Sensory Friendly Film Program NOVEMBER 5th – TROLLS

Sensory Friendly Film Program NOVEMBER 5th  @ 11am
The Galleria 14 in Beckley, McDonald’s The Early Show with Rick and Lola  and “Down with That” – invite families to enjoy  TROLLS   in a safe and accepting environment  trolls_web_bannerwith the  “Sensory Friendly Films” program.

Matinee pricing applies. Headphones and apparatus accommodations available upon request.

In order to provide a more accepting and comfortable setting for this unique audience, the movie auditoriums will have their lights brought up and the sound turned down, families

will be able to bring in their own gluten-free, casein-free snacks, and no previews or advertisements will be shown before the movie. Additionally, audience members are welcome to get up and dance, walk, shout or sing along- unless the safety of the audience is questioned.

All ages welcome!

 

Halloween is here- Halloween is for everyone!

When planning for little ghosts and goblins to visit your neighborhood – remember that some may take a little longer, some may not speak, some may be over stimulated, some may have dietary concerns. No matter the diagnosis every child wants to be included in the festivities.   #More alike than different #Halloween is for everyone #Down Syndrome Awareness    We are a resource if you have questions.  Down21wv@gmail.com

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Our Buddy walk –

We are so grateful to all our families and friends that came out to support us at Beckley Buddy Walk 4  October 1st at Crosspoint Church.  What a great day to celebrate our families!
Check out some of our media coverage here from WVNS- 59News!
http://www.wearewvproud.com/clip/12774157/despite-disabilities-people-can-achieve-anything

http://www.wearewvproud.com/clip/12784658/occupational-therapy-dogs-offer-companionship-during-buddy-walk

Thank you again for being with us!
Happy Down Syndrome Awareness Month
The DWT Crew!

BECKLEY BUDDY WALK 4 – 10/1

Tomorrow is the BIG DAY!  We couldn’t do it without our Families, Volunteers and SPONSORS!  Be sure to thank them for all they do for us!

 

Activities and special things

Tara Roush – Self Advocate/Special Guest

Beckley Wrestling Academy – Wrestlers

Lacy Face Painting  

Stryder Bikes

Lowes Craft!

Concord University/CEC chapter from Concord

University Of Charleston  – Therapy Dogs!

SRHSP – Fingerprinting ID kit

Betty Burns – Queens table

Challenger Little League/ raleigh County Special Olympics

Jump Zone

Unicare

Food Cart!

Raffles Music and MORE !

Crosspoint church!
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